“An inspiring children’s story that brings awareness to rare conditions in a way that’s educational, upbeat, and full of heart.”
The Super Sisters And Their Rare Pet Zebra is a book dedicated to my daughters, a testament to their bravery as we strive to raise awareness and find a cure for the rare genetic disorder known as INAD. My youngest and oldest daughters have been diagnosed with the Atypical form of INAD, referred to as ANAD (Atypical Neuroaxonal Dystrophy), a rare genetic disorder characterized by regressions, loss of vision, muscular control and mental skills, yet they continue to inspire us with their resilience. INAD stands for Infantile Neuroaxonal Dystrophy. The purpose of this book is to provide insight into my daughters’ experiences as we navigate life together while combating this disease, which has significantly impacted their physical mobility. This book offers an educational experience, shedding light on the challenges of living with a rare disease. The zebra featured in the book serves as a symbol for Rare Diseases.
We aim to utilize this book as a tool to raise awareness for ANAD / INAD and allocate a portion of the proceeds to support the INAD Cure Foundation’s ongoing research and gene therapy trials. The Super Sisters And Their Rare Pet Zebra is now available.
The Super Sisters And Their Rare Pet Zebra
Now Available on Amazon : https://a.co/d/hV3cxeZ
Written by. Curtshandra J. Duplechain
As a lifestyle blogger and motivator, I’m deeply inspired by my daughters’ resilience and determination, fueling my passion to raise awareness and drive progress towards a cure for INAD/ ANAD, a rare genetic disorder.
The book is illustrated by my lovely daughter Emerey with digital enhancements.
Formatted and Organized by. Kieaerra Curry
Founder of Mama’s Who Pray Community and Author of Destined to be a Doula
Check out her book here: https://a.co/d/aRWzlMs
For more information and any question email: Restinhope.life@gmail.com
Intentional Hope 